EV71型手足口病合并脑炎患儿母亲照顾体验的质性研究.pdfVIP

论 著 Research Paper EV71型手足口病合并脑炎患儿母亲照顾 体验的质性研究 谢安慰 阐玉英 钮美娥 汪茜雅 陈奕 [ 摘 要 ] 目的：了解 EV71型手足口病合并脑炎患儿母亲在照顾患儿期间内心深处的感受，为临床护理提供依据。方法： 采用质性研究中的现象学研究法，深度访谈并收集18 名患儿母亲的资料。结果：运用Co1aizzi法通过阅读、分析、反思、分 类和提炼，得出3 个主题：过重的心理负荷，沉重的经济负担，渴望疾病相关的知识。结论：深入了解 EV71型手足口病合并 脑炎患儿母亲的真实照顾体验，有利于护理人员对其提供专业照护知识指导及心理疏导，促进其身心健康和患儿康复。 [ 关键词 ] 手足口病；儿童；母亲；质性研究 [中图分类号] R47 [DOI] 10.3969/j.issn.1672-1756.2015.02.013 True experience of the mothers of children with EV71 type HFMD complicated with encephalitis: a qualitative research / XIE Anwei, CHAN Yuying, NIU Meie, WANG Xiya, CHEN Yi // Nursing Department of Suzhou University, Jiangsu province, 215003 China /// Chinese Nursing Management-2015,15(2): 165-168 [Abstract] Objective: To explore the experience of the mothers of EV71 type of hand, foot and mouth disease (HFMD) children complicated with encephalitis. Methods: Eighteen mothers of EV71 type of HFMD children complicated with encephalitis participated in half-structured interviews regarding their experience of care-giving. The data were collected by method of phenomenological analysis. Results: Three themes, named heavy psychological burden, heavy economic burden and lack of related knowledge of disease, were extracted by using Co1aizzi research method. Conclusion: Understanding the caring feelings of mothers of children with EV71 HFMD complicated with encephalitis could help nurses provide professional care education and psychological counseling, and promote mothers physical and mental health and childrens recovery. [Keywords] hand, foot and mouth disease; child; mother; qualitative research 手足口病（Hand Foot Mouth 病合并脑炎患儿母亲的体验和需求，对