残障研究方法与研究伦理Ethical Guidelines in disability research.pdfVIP

NDA Ethical Guidelines for Disability Research ETHICS IN DISABILITY RESEARCH ‘ Ethics are a matter of principled sensitivity to the rights of others ’ (Bulmer, 2002 cited in RESPECT, 2003:4) Research has an important contribution to make towards achieving full human rights and social justice for people with disabilities (CSPD, 1996; UN, 1993).1 As the field of disability research in Ireland expands, it is vital that quality in such research be ensured. The NDA believes that quality research and ethical research are synonymous, so that adhering to ethical good practice is a quality assurance issue. The NDA understands ethics to be “ a set of standards by which a particular group or community decides to regulate its behaviour – to distinguish what is legitimate or acceptable in pursuit of their aims from what is not” (Flew, 1979:112). In accordance with its statutory role in relation to disability research, the NDA offers these guidelines as a resource to assist the expansion of quality disability research in Ireland. The guidelines have been drawn up through consideration of best international practice alongside a wide process of consultation, in particular consultation with people with disabilities. The NDA advocates that disability research in Ireland adhere to the Core Values and Ethical Guidelines set out in this document. The NDA recommends that those responsible for approving new research projects in this field utilise this document to inform their decision-making processes. These guidelines are designed to be used by those involved in funding, conducting, or managing disability research, most especially that which involves people with disabilities as participants. They do not replace existing general ethical guidelines in social and