残障研究方法与研究伦理Doing research with people with learning disablities.pdfVIP

Specialist Research Ethics Guidance Paper DOING RESEARCH WITH PEOPLE WITH LEARNING DISABILITIES This paper discusses some of the ethical implications of undertaking social research (including social care research) with adults with learning disabilities and should be read in conjunction with wider ethics policy documents which can be found on the University of Sheffield’s Ethics Policy website. Documents that are of particular relevance include: Research Ethics Policy Note no. 5, ‘Ethics review of health and social care research’ www.sheffield.ac.uk/ris/other/gov-ethics/ethicspolicy/policy-notes/health-social-care Research Ethics Policy Note no. 2, ‘Principles of consent’ www.sheffield.ac.uk/ris/other/gov-ethics/ethicspolicy/policy-notes/consent Report of Ethics Workshop on Research Involving Adults who Lack the Capacity to Consent (24 May 2011) www.sheffield.ac.uk/ris/other/gov-ethics/ethicspolicy/further- guidance/educationresources/mencapworkshop Specialist Research Ethics Guidance Paper entitled ‘Research involving adult participants who lack the capacity to consent’ This paper takes a broad view of research ethics and includes discussion of the historical relationship between the academy and the category of ‘learning disability’ and the power dynamics of contemporary relationships between people with and without learning disabilities. It makes no claim to cover all, or even most, of the ethical issues that can arise when undertaking research with people with learning disabilities but includes discussion of the following areas: • The academy and learning disability • Understandings, definitions and terminologies • Capacity to consent to participate in research