Family Interview Study Impact of a Hearing Screen ….pptVIP

EHDI Conference 3.3.05 EHDI Site Visit 10.29.03 RI EHDI:Mediating Factors on Maternal Stress Empowerment Betty Vohr, MD Julie Jodoin, MEd, MA Family Perspectives Study Principal Investigator Betty Vohr Co-Investigators Mary Jane Johnson Deborah Topol CDC Investigator Pamela Costa Study Coordinator Julie Jodoin Data Analyst Richard Tucker Research Assistants Jyllian Anterni Cara Dalton Martha Leonard Study’s Purpose Study psychosocial characteristics of families with young children who have had their hearing screened as newborns Goals Study Questions 1. Newborn Hearing Screening Process Does a false-positive screen have a lasting impact on parent stress and coping skills? 2. Early childhood Services What are we doing/can we do to empower parent in the first three years of a child’s life? Our prior study of the impact of a hearing screen program on mothers revealed that 10% of mothers experience stress (worry) at the time of the screen 42-50% of mothers experience stress (worry) at the time of the rescreen Rationale 1 Unanswered questions: How long does worry persist? What are the mediators? How does it impact on the child? Rationale 2 Hypotheses Parents of infants with HL will report the greatest levels of stress. Parents of infants who do not pass the initial screen but pass the re-screen will report decreasing stress over the 3 assessments. Parents of infants who pass the initial screen will have the lowest levels of stress. Hypotheses (cont.): Parents with better support systems will exhibit less stress over time. Parents with lower stress levels will have more optimal perceptions of their child’s language. Anticipated Study Groups Families of: (n) Newborns with permanent HL (30) Newborns who did not pass the in-house screen but returned and passed the rescreen (30-60) Newborns who passed the screen (60) Eligible DOB 10.15.02 - 1.31.05 Study Design Study Groups Mediators