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Secure Data Linkage and Information Sharing （安全数据链接和信息共享）.pdf

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Secure Data Linkage and Information Sharing （安全数据链接和信息共享）

HIC 2008 Australias Health Informatics Conference Editor: Heather Grain Publisher: Health Informatics Society of Australia Ltd (HISA) ISBN 978 0 9805520 0 3 © The author(s) HISA All rights reserved Secure Data Linkage and Information Sharing With GRHANITE™ 1 2 Siaw-Teng Liaw PhD, FRACGP, FACHI , Douglas Boyle PhD, FACHI 1 2 Professor, Senior Research Fellow, School of Rural Health University of Melbourne Faculty of Medicine, Dentistry Health Sciences. Abstract Objectives: To address and simplify the operational, ethics, consent and governance processes during the secure collection of individual identiﬁ ers and the accurate, reliable and conﬁ dential identiﬁ cation and re-identiﬁ cation of individuals to facilitate safety and quality of health care as well as accurate and rigorous evaluation research. Background: Linking accurate personal information to decision support systems can improve professional services e.g. health care or ﬁ nancial management. Linking professions will promote integrated services, avoiding costly duplication of infrastructure and services. However, where person-speciﬁ c information is held, there are risks of identity theft or conﬁ dentiality breaches. The ethics and governance processes involved in routinely collecting data for service provision, research, evaluation, quality assurance, policy development and governance reporting need to be integrated yet simpliﬁ ed. Methods: Functional speciﬁ cations for ethical, secure and accurate information sharing and management were established. A ﬂ exible decentralised design methodology was adopted to develop GRHANITE™ to manage informed consent, encrypt, extract,